1616.9792 WHEN c .3 When A FRIEND HAS AIDS*** ILLINOIS STATE LIBRARY FEB 2 ^ 1992 ILLINOIS DOCUMENTS ^ ^hile serious illness is a fact of everyday life, AIDS has posed new challenges for ^r^^everyone involved: not only individuals with AIDS, but also their friends. People who are in the prime of their lives have become ill, and their prospects for a long life may be severely affected. Their situation is not an isolated one, but Is shared by people close to them. When someone you know becomes III, especially with a serious Illness like AIDS, you may feel helpless or inadequate. If this person is a good friend you may say, "Just call if you need anything." Then out of fear or Insecurity you may dread the call, if it comes. Here are some thoughts and sugges¬ tions that may help you to help someone who is ill. ^ Try not to avoid your friend. Be there — it instills hope. Be the friend, the loved one you've always been, especially now when it is most important. V Touch your friend. A simple squeeze of the hand or a hug can let him or her know that you care. (You needn't be afraid.. .you can not contact AIDS by simply touching.. .and hugs are very reassuring.) ^ Call and ask if It is okay to come for a visit. Let your friend make the decision. He/she may not feel up to a visitor that day. You can always visit on another occasion. Now is a time when your friend¬ ship can help keep loneliness and fear at a distance. V Respond to your friend's emotions. Weep with your friend when he/she weeps. Laugh when your friend laughs. It's healthy to share these intimate experiences. They enrich you both. V Call and say you would like to bring a favorite dish. Ask what day and time would be best for you to come. Spend time sharing a meal. V Go for a walk or outing, but ask about and know your friend's limitations. Offer to help answer any correspondence which may be giving some difficulty or which your friend may be avoiding. V Call your friend and find out if anything is needed from the store. Ask for a shopping list and make a delivery to your friend's house. ^ Celebrate holidays and life with your friend by offering to decorate the home or hospital room. Bring flowers or other special treasures. Include your friend in your holiday festivities. A holiday doesn't have to be marked on a calendar, you can make every day a holiday. /6 • ’fyfo- vyry If Check in with your friend's lover, care-partner, or roommate. They may need a break from time to time. Offer to care for the person with AIDS in order to give the loved ones some free time. Invite them out. Remember, they may need someone to talk with as well. ¥ Your friend may be a parent. Ask about the children. Offer to bring them to visit. ¥ Be creative. Bring books, periodicals, taped music, a poster for the wall, home-baked cookies or delicacies to share. All of these can bring warmth and joy. ¥ It's okay to ask about the illness, but be sensitive to whether your friend wants to discuss it. You can find out by asking: "Would you like to talk about how you're feeling?" However, don't pressure. ¥ Like everyone else a person with AIDS can have both good and bad days. On good days treat your friend as you would any other friend. On the bad days, however, treat your friend with extra care and compassion. ¥ You don't always have to talk. It's okay to sit together silently reading, listening to music, watching television... holding hands. Much can be expressed without words. ¥ Can you take your friend somewhere? Transpor¬ tation may be needed to a treatment.. .to the store or bank.. .to the physician.. .or perhaps to a movie. How about Just a ride to the beach or the park? ¥ Tell your friend how good he/she looks, but only if It is realistic. If your friend's appearance has changed, don't Ignore it. Be gentle, yet remember, never lie. ¥ Encourage your friend to make decisions. Illness can cause a loss of control over many aspeas of life. Don't deny your friend a chance to make decisions, no matter how simple or silly they may seem to you. ¥ Tell your friend what you'd like to do to help. If your friend agrees to your request, do it. Keep any promises you make. ¥ Be prepared for your friend to get angry with you for "no obvious reason", although It feels that you've been there and done everything you could. Remember, anger and frustration are often taken out on the people most loved because it's safe and will be understood. ¥ Gossip can be healthy. Keep your friend up to date on mutual friends and other common interests. Your friend may be tired of talking about symptoms, doaors and treatments. ¥ What's in the news? Discuss current events. Help keep your friend from feeling that the world is passing by. ¥ Offer to do household chores, perhaps taking out the laundry, washing dishes, watering plants, feeding and walking pets. This may be appreciated more than you realize. However, don't do what your friend wants and can do for him/herself. Ask before doing anything. ¥ Send a card that says simply "I carel" ¥ If your friend is religious, ask If you could pray together. Spirituality can be very important at times such as these. ¥ Don't leaure or direct your anger at your friend if he/she seems to be handling the illness in a way that you think is inappropriate. You may not unders¬ tand what the feelings are and why certain choices are being made. ¥ Help your friend understand any feeling of blame regarding the illness. Remind your friend that lifestyles don't cause diseases, germs do. This may be especially hard for both your friend and you. Help however you can. ¥ If you and your friend are going to engage in sex, be Informed about the precautions which make sex safer for both of you. Follow them. Be imagina¬ tive. .. .. .touching, stroking, and massage can also be fun. ¥ A loving family member can be a source of strength. Remember that by being a friend or lover you are also a part of the family. ¥ Do not confuse acceptance of the illness with defeat. This acceptance may free your friend and give a sense of his/her own power. ¥ Don't allow your friend or the care-partner to become Isolated. Let them know about the support groups and other concrete, practical services offered without charge by the SF AIDS Foundation, the SF AIDS Fund, the AIDS Health Project, SF Hospice and Shanti Project. ¥ Talk about the future with your friend.. .tomorrow, next week, next year. It's good to look toward the future without denying the reality of today. ¥ Bring a positive attitude. It's catching. ^ Finally, take care of yourselfl Recognize your own emotions and honor them. Share your grief, anger, feelings of helplessness or whatever Is com¬ ing up for you with others. Getting the support you need during this crisis will help you to be there for your friend. A lthough these thoughts are meant primarily for the most at risk communities for AIDS in San Francisco, they are relevant to all who are terminally ill. This brochure was originally conceived of and developed by Chelsea Psychotherapy Associates of New York. This version was created with permission of Chelsea Psychotherapy Associates by the San Francisco Community Partnership on AIDS. The Partnership wishes to thank Chelsea Associates for their ongoing innovative efforts to produce sensitive materials to help all of us cope with the AIDS epidemic. The San Francisco Community Partnership on AIDS is a coalition of groups in San Francisco committed to fostering a well-coordinated response to the AIDS crisis. The members of the Partnership include: • ACUJ Northern California Gay Rights Chapter • Alice B. Toklas Lesbian/Gay Democratic Club • Bay Area Lawyers for Individual Freedom • Bay Area Physicians for Human Rights • Committee to Preserve Our Civil Liberties • Concerned Republicans for Individual Rights • Golden Gate Business Association • People with AIDS-San Francisco • San Francisco AIDS Foundation • Stonewall Gay Democratic Club Distributed by the Illinois Department of Public Health for further information call the AIDS Hotline 1-800-AID-AIDS ^ (Toll-free in Illinois) " .. UNIVERSITY OF ILLINOIS-URBANA 3 0112 122614610 Written by Chelsea Psychotherapy Associates Distributed by: Impact AIDS, Inc. 3692 - 18th Street • San Francisco, CA 94110 415-861-3397